Impact on patients and their relatives
Six RELENT clinical investigators co-ordinate and participate in clinical studies on an international scale. Their close collaboration with Patients’ organisations will give the relevant target groups not only rapid information about the latest research results but also access to participation in clinical studies translating the results of RELENT to improved health care regimen. We aim at achieving this with active support of patient advocacy groups who have commitment to equality of health care throughout Europe and the world. Mrs Jutta Lindenthal, spokeswomen for Working Group Vasculitis, the largest European, and Mrs Joyce Kullman, Executive director of the Vasculitis foundation, the largest US based patients group, have agreed to serve on RELENT's advisory board. It is for the patients, not only with them, that we seek to advance the knowledge about their disease and ways to better treat it.